Wednesday, April 15, 2009

One Step Forward and Two Steps Back




What a day. We walked into the NICU and saw Keaton had an oxygen bubble on his head. This is a clear plastic bubble that throws off oxygen and prevents him from having tubes hooked to his face for breathing. This device replaced his C-PAP. We were so excited. What a blessing. It looks uncomfortable and awkward, but way more comfortable than the C-PAP. The difference with the two, other than placement and all, is the C-PAP pushes in air and helps open up the lungs. So this is truly a step forward for Keaton.

Keaton is also up to 4 ml of breast milk and at his night feeding tonight they will increase it to 5 ml which is 1/5 of an oz. That is huge. He still hasn't had a bowel movement. The concern with that is because preemies have a lot of digestive problems and often end up having surgery on their bowels. Please pray that his body learns to digest food properly and what goes in is able to go out. And pray that he starts gaining weight. Also pray for his overall health, his brain development, his heart, sight, hearing etc...

Little Ms McKenna Jo has Kyle and I both worried. She is SO little and just seems to get smaller and smaller every day. Part of this is because we see her brother that is a pound heavier than her, then go over and see this tiny 1 1/2 lb baby that is literally only skin and bones. Yesterday she weighed in at 1 lb 13 oz so it appeared that she had gained an ounce but the nurse was quick to point out she probably didn't gain any weight. They often look like they do but they just need to go the restroom, or it could be even the simple fact she had a new IV put in her body that makes her look like she gained weight.

Yesterday they let me hold her as they changed her bedding. It was literally only two or three minutes, and i didn't get to cradle her or anything. It was holding her tiny body in my hand, but I loved it. She seems to take peace in being held by me which melts my heart into a million pieces. They had taken off her C-Pap and we go to see her eyes and hair and face. She is beautiful!!! And she just watched me the entire time I held her. The second I put her down she started crying. She knows who her momma is. :)

Today when we visited the nurse asked if I wanted to help change her diaper. Because they are on the bellirubin lights they don't really put a diaper on her...really just put it more under her. It was scary lifting up her tiny hips to scoot it under her because she is SO little. And the diaper change made her really mad! She fussed and sounded like she had a real baby cry it was so loud today. She got so worked up that she stopped breathing a few times. It was so scary to watch.

We are praying for McKenna to gain weight, to continue having bowel movements, to get bigger, to continue to breathe and to remember to breathe, for her heart to close in any holes it may have and for her overall health, hearing, sight, etc.

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