It's so easy to get on here and complain or talk about all the negatives that our poor little girl is going through, so today we are going to try to start out with some positives.
McKenna weighed in at 5 pounds this morning. I wanted to cry with joy. She is officially the weight of a bag of sugar and is truly as sweet as one too. This is a huge step forward, especially since she had started losing weight when she first checked in, and since she had only gained four pounds when she was home for a week.
Yeah, that's pretty much the only good news. Nurse came in this morning and asked how McKenna was doing. My reply was that she was just sitting there stooling blood for them. He commented that it looks like she will be going to St Louis or Kansas City becaues Springfield just doesn't have the specialists needed to deal with this stuff. While the trip would be a good thing and maybe we could finally get some answers, we can't help but be negative and think that all the tests ran here have come back negative for problems, so what will a specialist find? Also, we are rather frustrated that NICU felt it okay to release her under these circumstances when we have had three pediatricians now tell us how alarming it is that she has been stooling blood for such a long time and that it was just blamed on a fisher.
Also, during the middle of the night McKenna had an Apnea spell. This is where she stops breathing for over twenty seconds. That's a long time for anyone, let alone a five pound baby. It happened while she was sleeping and the nurse ran in, observed her and started stimulating her - rubbing her back rather hard and talking to her. It was so scary to watch. The nurse told me to go get some sleep as she was doing this. ARE YOU KIDDING ME?!?! Our child is not breathing, you are breaking her back trying to get her to "come back" and you want me to sleep?
Please keep praying. We are worried sick, and if St Louis or KC is the next step then we will have to figure out what to do because there is still our little baby boy that needs one of us to take care of him, and Kyle has taken SO much time off work already that we really don't want him to take any more off, and if only one of us goes with McKenna, that means that the other parent doesn't see Keaton, and the one that doesn't go doesn't get to see McKenna. All very nerve racking!!!
Waiting for doctor to come in this morning and tell us the next step.
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