Coming Home

Well, here goes attempt two at bringing our baby girl home. She is being discharged this afternoon and we are just praying that she will be okay.

The heart drops and apnea spells...because the hospital monitor was set at a higher setting (low heart rate of 80) they are not concerned now about the spells. So, they are sending her home and their thought process is that she will continue to grow out of it with age and that she will slowly just get better and better. If she has a spell at home outside of feedings and turns color we are suppose to call the doctor before rushing her back here. They don't want her in the hospital if they can avoid it, due to all the germs and sickness.

The bloody stools are still there this morning so we are sticking with their plan to keep her on Nutramagin formula for another week. If the stools continue we will move her to the more expensive one for two weeks, then a GI scan if continue after that. We will follow up with our doctor next week to see if we are doing any better.

Blood counts miraculously went up. That is awesome and we are so excited to hear that. Thursday she will have to come back in for blood work, and then will have to get it once or twice a week until bloody stools go away. Will require blood work more often if the numbers begin to decrease too rapidly.

McKenna is slowly gaining weight, and not quite quick enough to make the doctor happy. So, we are meeting with a nutritionist before we leave to see if she should increase calorie intake or volume. It is tricky to get her to drink even an ounce and a half, so I am sure we will lean toward the calorie increase, but will just see what she says. We go next week for a weight check and will determine more at that point. She is still five pounds this morning.

We are eager to get home and play with Keaton and see daddy, but nervous as to how she will do at home. Guess we can only do so much, so we will do our part and plan on God doing the rest.

Keaton is meeting with First Steps (development program) this morning to be evaluated on ways we can help him grow mentally and physically. They will make recommendations as to whether speech (for feedings), physical or occupational therapy is needed for him and how often he needs to see the therapists. The nice thing about First Steps is they come to the house, so we don't have to get them out in the germs. And it is very similar to Parents As Teachers where they will show us what WE can do to help him along rather than always depending on them to do the work. McKenna will be evaluated in the next couple of weeks as well.

Daddy is concerned Keaton has hearing problems, so we are anxious to get his hearing tested and hoping this program can help him if he does. We are also concerned with how much his feet turn in toward his body and he doesn't have great neck or back muscles yet.

Thanks everyone for the continued prayers.