So sorry everyone for the delay in updates. The past few days have been exhausting and trying to find time to get on the computer has been difficult.
Friday we got the call that they were going to send our baby girl home. We were thrilled but nervous as could be. They decided to send her home even with her low blood count, severe anemia and daily heart drops. Apparently they thought she would do better at home.
The doctors had increased her iron intake due to low iron and not producing blood still, but the iron (she receivved it orally) was causing her to choke and have heart rate drops, so they have put a stop to the iron until she sees her pediatrician and then the doctor will tell us at what point to put her back on it.
Heart rate drops - she still has several a day with feedings. The night of discharge we had to feed her before she left and she had three heart rate drops during that one feeding alone. They suspect it is still just due to immaturity. As she ages this should go away.
Her blood count is low and she is very pale, but it was not quite low enough to do a transfusion. The pediatrician will most likely retest her count at her two month check-up this Thursday to see if a transfusion is needed yet. She is 4 lb 9 oz, so we will get to see what she weighs now too.
We are so grateful for all the prayers and love and support. You are so amazing! Our children are home today because of people like you standing in prayer for us. THANK YOU a million times!!!
Please keep praying, and as I am able to find time will try to update the page. Currently getting about 45 minutes of sleep every three hours, so exhaustion has prevented updates the past few days.
Prayers for McKenna is for growth and maturity. Pray that her brain develops and she remembers to breathe while eating. Pray for increase on quantity she takes of food. She is so wonderful and it is such a blessing to have her home!
Keaton is doing well. He is getting huge and we are excited to take him to doctor Thursday to see how much he weighs. I am guessing seven pounds at least. hahaha.
Keaton is taking up to three ounces of milk every three hours now. We are hoping doctor will tell us we are okay to go longer at night between feedings but we will see.
The babies seem to enjoy each other. They haven't really done much together but lay there, but they take turns watching over each other. One will sleep while the other looks at him/her and vice versa. This morning McKenna started fussing a bit and by the time I finally got up to feed her she was asleep and resting her head on Keaton's hand. It was so cute and looked like he was comforting her. A protective big brother already. Love it.
Please keep praying for overall health and wellness for Keaton as well.
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