Struggles

McKenna is still struggling to control her heart. She either has too high of a heart rate or is having heart drops. Had a heart rate drop yesterday and two again today. She is just really struggling it seems and it is so hard to sit back and watch her go through this knowing we can't do anything to fix the problem for her. We are so grateful she is a fighter and such a strong little lady. Look forward to the day where there aren't any heart drops, sat drops, high heart rates, extreme exhaustion from her feedings, etc. She is up to 3 lb 13 oz now so she is getting closer to Keaton's weight.

Keaton is struggling with his feedings. He has been spitting up lately which isn't something he did while in NICU, so I imagine it is something we are doing. He struggles to burp too. We will often go over fifteen minutes of patting and rubbing his back and still won't get even the tiniest burp out of him. We realize that can cause spitting up, so hoping to learn new way of burping. We have an occupational therapist (OT) coming over this afternoon to help us with this.

The OT will be helping us with many things to speed up Keaton and McKenna's growth and help them to be where they should be for their age. They will help with physical therapy, things to increase movement and sleep and feedings, and also with speech and therapy. And the best part is that they come to the house. We still can't really take Keaton out because he is in the car bed and someone has to be back there with him at all times.

Keaton has picked up more of a voice. He cries about thirty minutes before his feedings, cries when he is having his diaper changed and does a lot of groaning and moaning when sleeping, stretching or if he is not in a deep sleep.

McKenna has increased her feedings to nearly two ounces, which is what Keaton drinks currently. She is really trying to catch up to her brother on the weight thing I think. She is a loud eater and gulps down her food but has done well at pacing herself lately which is great since her feedings is often a time when she has heart rate drops.

Please continue to pray for the babies. Doing our best to update this daily, but seems that there aren't always updates unless it is just to say McKenna has gained weight and now weighs x amount. Will do my best to update though as changes occur. Looking forward to our baby girl coming home and having the twins back together. This Friday will mark seven weeks since their birth. Can hardly believe it.