What a crazy and wild day this has been! We had been told Keaton would be going home this week most likely but they hadn't told us a day yet. And no matter how many times we try to get an answer we are left guessing, until this afternoon.
We were trained with CPR, watched the required videos and then had the home apnea monitor training (his heart monitor). So it was a full and busy day. And of course right before the apnea training the nurses drop on us that we are suppose to do "Room In" tonight and take Keaton home tomorrow. Just like that...no notice or warning or 24 hour plan ahead. Luckily we convinced them to let us do it tomorrow and if all goes well, Keaton will be coming home Thursday. Room In is when you stay at the hospital for the night with the baby and it allows parents to see how they do with the baby and the baby to see how he/she does outside the NICU. A bit scary since Keaton has been taken care of by nurses and professionals for the past six weeks and now we are finally allowed to take him home.
Poor Ms McKenna has had a rough couple days and they just keep getting harder on her. Lately she has hardly opened her eyes at all. She is very lethargic and exhausted after only a few minutes into her feedings. She is usually feisty and lately she hardly makes a peep. So, tonight they decided after four heart drops, dozens of sat (oxygen) drops and several feedings where she couldn't even take in the minimum amount that it is time for her to get her feeding tube back in. McKenna has done great and kept it out for several days but with the lack of eating she will lose weight quickly if they don't put it back in. And in addition to the tube, they are putting in an IV (which her body doesn't seem to hold those well) and giving her another transfusion tonight. Hopefully this transfusion will help her gain strength and energy to eat and digest her food, will decrease number of heart/sat drops, and give her overall wellness. We are worried about our baby girl and just praying that God would bless us with a miracle and allow this to be the thing that pushes her to improve.
Please pray for Keaton that he doesn't have any more heart drops, continues to eat well and digest his food, keeps gaining weight (is up to 4 lb 9 oz) and does well at home. We are excited he will finally be here, but again, a little overwhelmed and nervous as we are first time parents.
Please pray for McKenna that the doctor's get the IV in on the first attempt, that the transfusion goes well, that the food tube doesn't irritate her and she handles it okay, that she gains weight quickly, has a decrease or eliminates the heart/sat drops altogether, and for overall health and wellness.
We appreciate the prayers! Keep them flowing.
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