Wow, what a great week it has been. It is so rewarding when you work toward something for so long and finally start to see progrees. So here is the latest with my little twins...
Keaton, oh he is so big. A few weeks ago he weighed 22 lb 6 oz. He has grown and is the sweetest little boy. He gives kisses when requested (which is really just opening his mouth and then full force face into yours) and is a great hugger. His tantrums are getting a bit worse, so this week we implamented time-out. Yes, he is only fifteen months, but it has to start sometime, right? So when he throws his tantrum I usually just ignore him but this week a few times I picked him up and put him in his crib for a minute, or until he calmed down and that seemed to work. I don't expect it will continue to work, but hey, willing to keep trying.
Also this week Keaton decided to start walking. While he has taken steps here and there or from mommy to daddy he really hasn't gotten the drive to walk from object to object or place to place. Then Monday it all just clicked for him. He is walking everywhere. Don't get me wrong, he does still crawl a majority of the time, but he will pull himself to stand and walk to the couch, tables, tv, etc and he loves standing on his own too. He gets so proud of himself and has the largest grin. Man my son is adorable.
Keaton also decided this was the week to expand his vocabulary. If you tell him to say something, he does his best to repeat it or really tries hard to sound it out. He says night night, bu bye, nice, mess, oh man, frog (Which sounds like the "F" word), book, no, meow (sounds like mauw), mama, dada, nana, chef, fork, bite and a few other words...so he has really picked up a lot.
And McKenna, she has been pushed so hard lately with switching to Myer Center for therapy and we are finally seeing rewards. This week she pushed herself up into sitting position from her belly a few times. Then today all of a sudden she was doing in repeatidly. I even found her sitting up in her crib during nap time - she couldn't figure out how to get back down. So proud of her.
And her speech is improving too. She still doesn't talk, other than mama, but she is starting to babbly a little more, which is such a blessing to hear and she has the cutest little voice.
This week McKenna also decided she is done with afternoon naps. That's right, she thinks that an hour morning nap (two if I am reallllly lucky) is enough to get her through the day. She is cranky and tired around 6 pm which is way too late for a nap, so if she doesn't sleep at 3 then she is forced to stay up until 7:30 or 8. Wouldn't mind that as much if she slept better through the night. She actually has improved on sleeping through the night now that she only gets one feed at 10 pm and then is done by 11, but she still tosses and turns quite a bit until around 7 am, when Keaton wakes up, and then she sleeps until 8:30 or this morning it was until 9.
And, drum roll, McKenna ate a couple cheerios today. Gave her a cheerio and lately she will touch it to her tongue. So I gave her one and walked away to do dishes and she started gagging/Retching. Ran over to her and she had put the whole thing in her mouth, it melted and she was trying to get it out before she had to swallow it. But after that little episode she grabbed another cheerio and put it in, only this time she sucked it until it desolved. That's huge. And she did it two other times. SO excited. The feedings are so draining and I really needed her to do that! Even if it was only tonight.
So what are we working on still with McKenna and therapy? This week we are trying to get her rolling more for objects. She knows how to roll, but she lacks motivation. SO we are rolling, rolling and rolling some more. We are working on her sitting up from laying down position. This includes from back leaning to the side and sitting up, and from belly scooting back to one knee and pushing up. Currently (meaning today only pretty much) she can push herself into a W and work her legs around one at a time.
We are also working on crawling. Poor lil Mickey wants to move around so bad. She is finally breaking out of her comfort zone of sitting straight up and has started leaning forward and leaning to the sides so the therapist thought it would be good to start working with her on crawling. So rolling, sitting, crawling and standing. Getting her to stand from a knee stance to feet. And on top of all that, which takes at least a few hours a day of hard work, we are trying to get her to eat still, so we are implamenting new foods this week - pears and chocolate yogurt so far have been doable. Will hopefully try a vegetable this week and see how she does.
Keaton we are still working with increasing his vocabulary, his walking/standing on his own, fine motor skills like putting coins in a slot and on sharing which he really needs to learn.
I feel like such a blessed mother today! Grateful for my babies! Grateful for the chance to raise these two beautiful kids and for a husband that allows me to stay home with them all day.
Wednesday, July 14, 2010
Thursday, June 24, 2010
Another Change
McKenna's retching continue to increase and so does our stress. We are fed up with the episodes and feel completely helpless when it comes to resolving this for McKenna. We want answers and can't seem to get any from doctors or research. And the only answer that does seem to continue to show up is slow down the feeds, decrease the quantity.
So with her retching nearly doubling over the past few weeks, today I caved in and have agreed to slow down her feeds so it will take an hour for her to receive full feed. It is really hard for me to do that and makes me so sad, but every time she retches I just want to cry, so willing to slow it down if this could possibly help.
I am not caving in altogether though. While I did slow down the feed I increased the quantity. She was getting 160 ml at 280 ml/hr three times a day with a six hour night feed of 210 ml. In an attempt to help her feel and understand hunger our goal is to eliminate the night feed completely. So today while changing it to an hour long feed I increased the quantity to 200 ml she will get at 220 ml/hr three times a day with a 10 pm feed of 120 ml over about 45 minutes. So she should be completely done with her night feed by 11 pm. I am anxious and nervous to try this. Hopeful this will increase appetite and help get her going on eating, but a little fearful as it is always scary to try something new.
If nothing else, we are hoping that the cord not sticking in her belly all night will help her sleep better. McKenna still is not sleeping well and that is such a crucial part of development...good sleep.
So with her retching nearly doubling over the past few weeks, today I caved in and have agreed to slow down her feeds so it will take an hour for her to receive full feed. It is really hard for me to do that and makes me so sad, but every time she retches I just want to cry, so willing to slow it down if this could possibly help.
I am not caving in altogether though. While I did slow down the feed I increased the quantity. She was getting 160 ml at 280 ml/hr three times a day with a six hour night feed of 210 ml. In an attempt to help her feel and understand hunger our goal is to eliminate the night feed completely. So today while changing it to an hour long feed I increased the quantity to 200 ml she will get at 220 ml/hr three times a day with a 10 pm feed of 120 ml over about 45 minutes. So she should be completely done with her night feed by 11 pm. I am anxious and nervous to try this. Hopeful this will increase appetite and help get her going on eating, but a little fearful as it is always scary to try something new.
If nothing else, we are hoping that the cord not sticking in her belly all night will help her sleep better. McKenna still is not sleeping well and that is such a crucial part of development...good sleep.
Monday, June 21, 2010
Their First Swim
The inlaws have a neighborhood pool and I have been itching to take the babies in it since they both love bath time so much. Planned to go when my mom was here, then when Ashlee was here and neither of those times worked and Susie offered to watch a baby while I took the other one swimming. While this wasn't ideal to do it one at a time, I was willing to do whatever needed to get them in the water.
So, today it's 95 out and the sun is scorching down on us and Susie watched the babies while I ran errands. When I got home she asked if we were going to do the pool today, so I jumped at the opportunity. Got the babies all ready after their lunch, loaded the sunscreen and met Susie at the pool to find her wearing JEAN capris and a tshirt. I assumed she wouldn't do a bathing suit, but was surprised she was wearing jeans.
Anyhow, we got up to the swim area and they have a covered table area and she laid a towel down and said she would sit with one baby while I took the other to the pool. I feel bad because I was a little rude, but it's 95 DEGREES and a baby sitting out in the shade in that weather just wasn't acceptable to me, so I said, okay well let me get McKenna use to the water, then I will come grab Keaton and just take them both swimming at the same time. Susie agreed.
Luckily though within a few minuets of me having McKenna in the water susie was sitting with her feet in the water and holding Keaton between her legs so he could sit in the water too. SO long story longer, we got both babies in the pool at the same time. They loveeeed it. They kicked, splashed, cooed, and had a grand time. We only stayed there about 45 minutes but it was perfect. I am so blessed to have a mother-in-law that is eager to help and that loves her grandbabies so much! Can't wait for our next pool trip.
So, today it's 95 out and the sun is scorching down on us and Susie watched the babies while I ran errands. When I got home she asked if we were going to do the pool today, so I jumped at the opportunity. Got the babies all ready after their lunch, loaded the sunscreen and met Susie at the pool to find her wearing JEAN capris and a tshirt. I assumed she wouldn't do a bathing suit, but was surprised she was wearing jeans.
Anyhow, we got up to the swim area and they have a covered table area and she laid a towel down and said she would sit with one baby while I took the other to the pool. I feel bad because I was a little rude, but it's 95 DEGREES and a baby sitting out in the shade in that weather just wasn't acceptable to me, so I said, okay well let me get McKenna use to the water, then I will come grab Keaton and just take them both swimming at the same time. Susie agreed.
Luckily though within a few minuets of me having McKenna in the water susie was sitting with her feet in the water and holding Keaton between her legs so he could sit in the water too. SO long story longer, we got both babies in the pool at the same time. They loveeeed it. They kicked, splashed, cooed, and had a grand time. We only stayed there about 45 minutes but it was perfect. I am so blessed to have a mother-in-law that is eager to help and that loves her grandbabies so much! Can't wait for our next pool trip.
Tuesday, June 15, 2010
What a Month
This month has been crazy busy and filled with a lot of joy, stress, and sickness.
Mom and Mandie came to visit mid-May. It was great to see Mom and the kids ate up every minute and word she shared with them. She laughed the entire time at all that they do; she helped with changing diapers, feeding the kids, and tiring them out for good naps. She even was able to witness Keaton's first steps.
Mandie was "sick" the entire time, so she slept most of it, spent her time outside or working on a contract for her daycare. It was a real disappointment to us that we flew her here and then she hardly spent any time with us. Praying she gets better by Christmas so we can enjoy her.
Keaton got sick and had a temperature of 103 for four days. He puke all over the living room floor a couple times, ate little food, was fussy and didn't sleep well. He lost a few ounces which doesn't sound like a lot but it really thinned out his belly. Luckily after the virus passed though he was back to his playful energetic self.
Keaton loves Kraft Macaroni and Cheese and eats huge spoonfuls, sometimes not even taking time to chew before swallowing. He loves breakfast bars too - his favorite is blueberry. He still eats yogurt continually - vanilla bean fluffy is 160 calories so we do that to help him maintain his weight. He will occasionally eat spaghettios although he is getting sick of them. And that's about the extent of his diet...mainly because I have no idea what to feed him and I am not that healthy of an eater, so we really need to work on that. May try Chicken strips this week, although a bit nervous he will choke on them.
Keaton took his first step mid-May and loves the challenge of learning to walk. He smiles ear to ear, claps his hands and giggles when he takes a step without holding on to anything, or if he stands without holding. Last night he took 6 steps and daddy was even there to witness it.
Keaton is starting to get very possessive and jealous. He doesn't like it when McKenna gets a toy, book or attention. Apparently he thinks we should ignore her and pay attention to only him. He fusses, cries and throws a little tantrum which we just ignore. And occasionally he goes over and hits McKenna now...luckily for her though she is starting to get the drive to fight back, so I don't imagine he will continue bullying her for long. But that's a tricky thing...do I let him take toys from her and hit her because she needs to learn to stand up for herself, or do I punish him? I end up doing a little of both. My mom says we need to spend more time teaching them to share. I say they need to learn that if they want something they should go for it. And McKenna getting to play with a toy and Keaton trying to take it, well shouldn't she let him take it so she learns to share too? The tricks of parenting...hmmm.
Keaton is our little comedian. He is so funny and makes us laugh on a continual basis. The way he eats, facial expressions, noises, laughs, games, aggression...just about everything he does he seems to be looking for a positive reaction from it.
McKenna is a spitball. She is very stubborn, just like her mommy. She knows what she wants and fusses or whimpers until she gets it. She has a devious grin and always looks like she is plotting something. She raises just one eyebrow to get her point across. It's very comical.
McKenna still retches a lot (average 5 times a day) and it's stressful on us that there hasn't been any improvement with that. We are working on cutting out her night feed to see if that helps since a majority of her retches are during morning. To do that though it means increasing quantity during day feeds and that doesn't go over well with her. Is causing a few more retches than normal, but she is also sick so that could be why retching has increased. But currently we are doing feeds every 4 1/2 hours...8:30 am, 1 pm, 5:30 pm, 10 pm, 2:30 am...makes for a long day/night.
McKenna is doing a lot better on her bites. She is taking 35 breakfast, 45 lunch and dinner. Bites are getting a little bigger to where i would call them bites, not just tastes, and she is actually starting to open her mouth for a majority of them. Although she still spits most of the food out of her mouth rather than swallowing it. Again, since she is sick right now is struggling more with the bites. Only was able to get her to take three bites this morning and she retched after each one, so we stopped.
So McKenna has the cold Keaton had a couple weeks ago. Her temp has been around 102 and it is going on day three. I think her fever is finally breaking, but she cries when she coughs so most likely has a sore and swollen throat.
It has been difficult because for the first 12 months we were discouraged from bringing them in public or having people over. Now we are allowed to do that stuff, but if we do it we know they are going to be sick all the time because they haven't built up an immune system. SO, we will continue to bring them out, although Kyle would prefer we don't, and hopefully by the time we get to Flu Season Fall we will have a little more cushion and they will be stronger.
McKenna started sessions with the new Speech Therapist last Friday at Myer Center - No more Oxford Home Health. During the evaluation I did the feeding, and then again during the first session. Curious to see if that is how it will always be. Makes since for me to do the feeding since I am the one that does it at home, but the woman didn't give me any direction or advice, other than to follow what First Steps is telling me to do. Not sure what her thinking is behind that, but hoping to get courage to say something if that is how it is again this week. Don't really care to waste our time, energy and money if all I am doing is taking her to a different location so I can feed and someone can sit and watch without helping. She is suppose to be the best...not sure who has deemed her as that.
We start with the new Physical Therapist on June 22 so we are really excited about that and one of our friend's sons sees this PT and says how amazing she is, so that makes me a bit more hopeful than I am about the ST.
The kids went to their first bday party for a friend. It was a lot of fun, but a lot of work getting them there and out. Not sure how I could have done it without Kyle! He was a trooper and a huge help. And THAT has been our month. Hoping for a healthier and more productive next thirty days
Mom and Mandie came to visit mid-May. It was great to see Mom and the kids ate up every minute and word she shared with them. She laughed the entire time at all that they do; she helped with changing diapers, feeding the kids, and tiring them out for good naps. She even was able to witness Keaton's first steps.
Mandie was "sick" the entire time, so she slept most of it, spent her time outside or working on a contract for her daycare. It was a real disappointment to us that we flew her here and then she hardly spent any time with us. Praying she gets better by Christmas so we can enjoy her.
Keaton got sick and had a temperature of 103 for four days. He puke all over the living room floor a couple times, ate little food, was fussy and didn't sleep well. He lost a few ounces which doesn't sound like a lot but it really thinned out his belly. Luckily after the virus passed though he was back to his playful energetic self.
Keaton loves Kraft Macaroni and Cheese and eats huge spoonfuls, sometimes not even taking time to chew before swallowing. He loves breakfast bars too - his favorite is blueberry. He still eats yogurt continually - vanilla bean fluffy is 160 calories so we do that to help him maintain his weight. He will occasionally eat spaghettios although he is getting sick of them. And that's about the extent of his diet...mainly because I have no idea what to feed him and I am not that healthy of an eater, so we really need to work on that. May try Chicken strips this week, although a bit nervous he will choke on them.
Keaton took his first step mid-May and loves the challenge of learning to walk. He smiles ear to ear, claps his hands and giggles when he takes a step without holding on to anything, or if he stands without holding. Last night he took 6 steps and daddy was even there to witness it.
Keaton is starting to get very possessive and jealous. He doesn't like it when McKenna gets a toy, book or attention. Apparently he thinks we should ignore her and pay attention to only him. He fusses, cries and throws a little tantrum which we just ignore. And occasionally he goes over and hits McKenna now...luckily for her though she is starting to get the drive to fight back, so I don't imagine he will continue bullying her for long. But that's a tricky thing...do I let him take toys from her and hit her because she needs to learn to stand up for herself, or do I punish him? I end up doing a little of both. My mom says we need to spend more time teaching them to share. I say they need to learn that if they want something they should go for it. And McKenna getting to play with a toy and Keaton trying to take it, well shouldn't she let him take it so she learns to share too? The tricks of parenting...hmmm.
Keaton is our little comedian. He is so funny and makes us laugh on a continual basis. The way he eats, facial expressions, noises, laughs, games, aggression...just about everything he does he seems to be looking for a positive reaction from it.
McKenna is a spitball. She is very stubborn, just like her mommy. She knows what she wants and fusses or whimpers until she gets it. She has a devious grin and always looks like she is plotting something. She raises just one eyebrow to get her point across. It's very comical.
McKenna still retches a lot (average 5 times a day) and it's stressful on us that there hasn't been any improvement with that. We are working on cutting out her night feed to see if that helps since a majority of her retches are during morning. To do that though it means increasing quantity during day feeds and that doesn't go over well with her. Is causing a few more retches than normal, but she is also sick so that could be why retching has increased. But currently we are doing feeds every 4 1/2 hours...8:30 am, 1 pm, 5:30 pm, 10 pm, 2:30 am...makes for a long day/night.
McKenna is doing a lot better on her bites. She is taking 35 breakfast, 45 lunch and dinner. Bites are getting a little bigger to where i would call them bites, not just tastes, and she is actually starting to open her mouth for a majority of them. Although she still spits most of the food out of her mouth rather than swallowing it. Again, since she is sick right now is struggling more with the bites. Only was able to get her to take three bites this morning and she retched after each one, so we stopped.
So McKenna has the cold Keaton had a couple weeks ago. Her temp has been around 102 and it is going on day three. I think her fever is finally breaking, but she cries when she coughs so most likely has a sore and swollen throat.
It has been difficult because for the first 12 months we were discouraged from bringing them in public or having people over. Now we are allowed to do that stuff, but if we do it we know they are going to be sick all the time because they haven't built up an immune system. SO, we will continue to bring them out, although Kyle would prefer we don't, and hopefully by the time we get to Flu Season Fall we will have a little more cushion and they will be stronger.
McKenna started sessions with the new Speech Therapist last Friday at Myer Center - No more Oxford Home Health. During the evaluation I did the feeding, and then again during the first session. Curious to see if that is how it will always be. Makes since for me to do the feeding since I am the one that does it at home, but the woman didn't give me any direction or advice, other than to follow what First Steps is telling me to do. Not sure what her thinking is behind that, but hoping to get courage to say something if that is how it is again this week. Don't really care to waste our time, energy and money if all I am doing is taking her to a different location so I can feed and someone can sit and watch without helping. She is suppose to be the best...not sure who has deemed her as that.
We start with the new Physical Therapist on June 22 so we are really excited about that and one of our friend's sons sees this PT and says how amazing she is, so that makes me a bit more hopeful than I am about the ST.
The kids went to their first bday party for a friend. It was a lot of fun, but a lot of work getting them there and out. Not sure how I could have done it without Kyle! He was a trooper and a huge help. And THAT has been our month. Hoping for a healthier and more productive next thirty days
Friday, May 21, 2010
Cute Things
McKenna has started patting her chest with her hand. It's adorable. It's like a gorilla, only she does it softly. She squeals and she she does a growling noise that is almost scary sounding, but it's so cute.
She grabs her feet and sucks her toes, or at least attempts to. She gets really excited and starts breathing hard trying to get them in there.
McKenna picks at everything. She finds hairs wherever she is and grabs them, pulls on them, wraps them in her fingers...they are her favorite toy. Discusting, but fun to watch her hunt for them. And she does the same with fuzzies, crumbs, or anything small.
Keaton stands on his own, without holding on to anything, and gets the biggest grin on his face. He is so proud of his accomplishments and looks at you as if to say, "hey, look at me, can YOU do this?"
He loves books and will go off to the side of the room and spend twenty plus minutes flipping through a book and looking at pictures and is so proud of himself turning the pages.
Keaton loves reaching up to touch the light and fan in the ceiling when daddy is holding him, and he thinks dad is the coolest for letting him do it. He claps when he drinks out of his sippy cup by himself, or when he looks at an object you tell him to look at, like tree or ball.
And he is the cutest eater. He tries to chew with his front teeth and puckers his lips trying to get the food to stay in his mouth. And if the food starts to fall out, he uses his entire palm to shove it back in...as if his fingers couldn't put it back in.
I have the cutest, most funny, adorable, loving and beautiful babies in the world. Grateful for our blessings!
She grabs her feet and sucks her toes, or at least attempts to. She gets really excited and starts breathing hard trying to get them in there.
McKenna picks at everything. She finds hairs wherever she is and grabs them, pulls on them, wraps them in her fingers...they are her favorite toy. Discusting, but fun to watch her hunt for them. And she does the same with fuzzies, crumbs, or anything small.
Keaton stands on his own, without holding on to anything, and gets the biggest grin on his face. He is so proud of his accomplishments and looks at you as if to say, "hey, look at me, can YOU do this?"
He loves books and will go off to the side of the room and spend twenty plus minutes flipping through a book and looking at pictures and is so proud of himself turning the pages.
Keaton loves reaching up to touch the light and fan in the ceiling when daddy is holding him, and he thinks dad is the coolest for letting him do it. He claps when he drinks out of his sippy cup by himself, or when he looks at an object you tell him to look at, like tree or ball.
And he is the cutest eater. He tries to chew with his front teeth and puckers his lips trying to get the food to stay in his mouth. And if the food starts to fall out, he uses his entire palm to shove it back in...as if his fingers couldn't put it back in.
I have the cutest, most funny, adorable, loving and beautiful babies in the world. Grateful for our blessings!
Wednesday, May 19, 2010
Opening Her Mouth
What a blessed evening yesterday. I went to feed McKenna as usual and put the food on the spoon (apples and blueberries) and not thinking just put it in front of her mouth and held it there waiting for her to open her mouth. I was on the phone so a little distracted. And, to my surprise she opened her mouth. A fluke, right? No, she did it again, and again, and before I knew it McKenna opened her mouth for over fifteen bites. She spit out the food, or a good portion of each bite, but I don't even care because her mouth opened. And I think that I have heard that a lot of babies spit out food when you first start feeding them, don't they? they have to learn to swallow it and how to actually eat. Opening the mouth is the first step.
Then this morning I nervously put the sppon up to her mouth to see if she would repeat the same thing and open her mouth...SHE DID. Not only for breakfast, but for lunch and dinner too. And normally I feed McKenna 30 "tastes" each meal. Breakfast and lunch though McKenna opened her mouth for 40 bites. That is huge.
I feel so grateful for God giving McKenna this progress. We really have been discouraged lately and this is just what we needed. Now if we could just get her to swallow the bites, and to eat even half of a jar of baby food. And a food that is higher calories. She has to eat 120 calories every four hours. The jar of blueberries and apples, and the jar of pears are only 50 calories for a stage 2 jar. So we would benefit from her eating bananas or chicken or something like that.
Thanking God today. Excited to see what he allows her to do tomorrow.
Then this morning I nervously put the sppon up to her mouth to see if she would repeat the same thing and open her mouth...SHE DID. Not only for breakfast, but for lunch and dinner too. And normally I feed McKenna 30 "tastes" each meal. Breakfast and lunch though McKenna opened her mouth for 40 bites. That is huge.
I feel so grateful for God giving McKenna this progress. We really have been discouraged lately and this is just what we needed. Now if we could just get her to swallow the bites, and to eat even half of a jar of baby food. And a food that is higher calories. She has to eat 120 calories every four hours. The jar of blueberries and apples, and the jar of pears are only 50 calories for a stage 2 jar. So we would benefit from her eating bananas or chicken or something like that.
Thanking God today. Excited to see what he allows her to do tomorrow.
Saturday, May 15, 2010
Milestones
What a great week of growth for the babies. Keaton took his first step yesterday. My mom was here visiting and standing Keaton up and told him to walk to me. He moved one foot forward. Did it two different times. I think that's considered his first step, right? Even though it was only one foot? Either way, I was so proud of him.
We still struggle to get Keaton to eat without puking if there is any texture or if the food is too thick, but this week Keaton ate a half of a banana for my sister, without it being diced really small. He also ate some spinach quiche I made, diced tomatoes, a few french fries and a couple bites of a McDonald's cheeseburger. I was smiling ear to ear and so grateful. And Keaton is holding his sippy cup on his own and has even learned to tip his head back to get the milk to go in his mouth. He is usually still too lazy to drink it on his own, but we are working to encourage that more.
McKenna has had a great week too. She has been talking and making more noises this week, and even started her B's. So she now says mama and baba. She is currently mouthing papa but hasn't fully gotten the noise out.
During McKenna's evaluation Wednesday toward switching therapists she rolled from back to belly for the first time. I was so proud, but knew that she really only did it because she was SCREAMING for a solid hour and just so mad. But then tonight, of course while Kyle is outside mowing and nobody is there to see it but me, McKenna rolled back to belly, belly to back, and then back and forth multiple times. I was screaming for joy with her. It was so encouraging to see. I really needed that!
McKenna's bites and retching have not improved, but hopefully this week the motility specialist from KC is suppose to call and give a phone consultation. I am sure he will say he needs to see her, but hopefully we can get some kind of direction or answers via the phone.
Now if I can just get McKenna to turn into sitting position on her own, push up on her elbows/hands/knees on her own and for long periods of time, crawling, belly creeping, walking, babbling, eating, stop retching...the list goes on. But again, grateful for the steps forward today!
We still struggle to get Keaton to eat without puking if there is any texture or if the food is too thick, but this week Keaton ate a half of a banana for my sister, without it being diced really small. He also ate some spinach quiche I made, diced tomatoes, a few french fries and a couple bites of a McDonald's cheeseburger. I was smiling ear to ear and so grateful. And Keaton is holding his sippy cup on his own and has even learned to tip his head back to get the milk to go in his mouth. He is usually still too lazy to drink it on his own, but we are working to encourage that more.
McKenna has had a great week too. She has been talking and making more noises this week, and even started her B's. So she now says mama and baba. She is currently mouthing papa but hasn't fully gotten the noise out.
During McKenna's evaluation Wednesday toward switching therapists she rolled from back to belly for the first time. I was so proud, but knew that she really only did it because she was SCREAMING for a solid hour and just so mad. But then tonight, of course while Kyle is outside mowing and nobody is there to see it but me, McKenna rolled back to belly, belly to back, and then back and forth multiple times. I was screaming for joy with her. It was so encouraging to see. I really needed that!
McKenna's bites and retching have not improved, but hopefully this week the motility specialist from KC is suppose to call and give a phone consultation. I am sure he will say he needs to see her, but hopefully we can get some kind of direction or answers via the phone.
Now if I can just get McKenna to turn into sitting position on her own, push up on her elbows/hands/knees on her own and for long periods of time, crawling, belly creeping, walking, babbling, eating, stop retching...the list goes on. But again, grateful for the steps forward today!
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