Hanging On, Kind Of

Have never felt so helpless, stressed, sad for my baby girl. Watching them dig a hole into her stomach with scissors yesterday, without pain meds or numbing cream, was heart breaking and makes me feel so guilty. Not sure what else I can do to help her or how to make her feel better or get better or move forward with a healthier future and it is so frustrating that doctors here have no answers, doctors in KC don't care, and we are left here as parents helpless with no direction or hope. Praying tonight is the night of miracles and that God heals our baby and that this is just one more stage to her testimony.